To Syrina With Love

Syrina is 12 years old (born January 18, 1995). When she was 18 months old, she was diagnosed with autism and epilepsy. Even now, she can't speak, can't go to the toilet (she wears specially made diapers), and can't do such rudimentary things as feeding herself using a fork and/or spoon. This blog is comprised of all the things I would love to say to her, but which I don't know that she'll ever understand. I, of course, am her mother.

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Location: Sunderland, Tyne & Wear, United Kingdom

I'm an American "ex-pat," having moved to my husband's hometown in 2003. I'm now enjoying life as a "domestic goddess" ... or as close to one as I can GET! *lol* I've been married to the love of my life since 1999, and I have 4 gorgeous girls, of whom I'm very proud. I can be a little neurotic and krazy at times... and very opinionated. However, as opinionated as I am, I'm also very open-minded and have a "live and let live" attitude. I'm a walking, breathing contradiction... and that's why people love me. :)

Friday, January 12, 2007

MORE D.L.A. progress!!!!

Well.... ya know how I said "it's all just a matter of time"?

Things are progressing quite quickly. The phone rang this morning - Hubby was out at an appointment with the Job Centre regarding his going to school next week, so I had to answer it. The woman actually asked if *I* was Syrina!!!! LOL!!! I told her, "Um... Syrina doesn't speak." So then she asked for Hubby, and I told her that he was out. When she said where she was from, I told her "Well, I'm the mother, you can talk to me!"

They want me to take her to see the doctor on the 23rd. I was under the impression - from what Hubby said - that the doctor would be coming here. But it's not a big deal. The appointment is set for 10:45 a.m., which means I can easily get the other 3 to school, back home, and get her wherever we're going (not exactly sure yet, they're going to send me all the details in the mail). I'll just keep her off school until after the appointment, and I can take her back to school on the bus afterwards.

They're moving along with this a lot quicker than I had thought. But that's a good thing. I was really hoping that they wouldn't drag this out. Back when I first applied for her social security benefits, it took them over a year to deny her. Then I applied again a year (or two?) later, and it took them 6 months to get to the point where they'd even send her to a doctor. Once I did that, though, it wasn't long before they finally approved her. I'm hoping it'll be a similar situation with these DLA people.

Oh... that's another thing. Hubby was doing some research on what they pay for DLA and all that, and found out that not only will we get more money from them, but we'll get more money for her on our Child Tax Credit benefit as well, just because she's disabled. If everything goes through as it should (and I can't see any reason why it wouldn't), our monthly income will almost double!!!

That forklift is so close I can almost see the driver!!!

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